I
cheered every name on this open letter and was wondering how much longer do we
have to wait before the right thing to do, is done?
I also wished I had enough funds to take them all to court. The lives ruined because of this
shameful research would be striking.
If you
laid all the people and the children with ME hand in hand; lying down
obviously, they would stretch around the world. The whole world is affected and
touched by this illness, and none of those that suffer get the help they need
or deserve. This huge falsification of facts that has led to a myth, that has
harmed all those people around the world, needs to be taken down.
When
you go to court you have to have an idea of the compensation you would ask for
if you win the case and this also got me thinking.
Motivational
speakers insistently talk about the little things and taking control. Well let
me tell you that the little things that count in life are not valued. I would
be laughed out of court if I asked for compensation over picnics with my family
and our dogs. But it is those picnics in these last few years that I have
missed the most. Picnics at the seaside; playing games on the sand, at woodland areas with bikes, in the back garden with family and friends, we have missed them all. The only place my son
can have a picnic is in our home.
What
the motivational speakers don’t tell you is, that sometimes when you do the
smallest of things it can feel like a smack in the face with wet cold and
smelly fish.
At 8 my
son found it funny - having a picnic in the house on rainy days. He became so
unwell he could no longer laugh at my funny ideas. At 13, my son would feel as
this small attempt at gaining something he has lost, as a smack in the face
with that large smelly fish.
In my mind I hear the words of William Shakespeare spoken by Emma Thompson, in the way she played the scene from “Love Actually”.
LV sonnet
“like
as the waves make towards the pebbled shore,
So do
our minutes hasten to their end;Each changing place with that which goes before,
In
sequent toil all forwards do contend.”
I think of all those people, researchers, doctors and sufferers that we have changed places with, as well as the time that comes crashing in on us, washing us out to sea. What compensation would ever replace that time lost? Of those memories we should be able to cling onto in times of hardship or when our time has come?
I think
of all those yet to come that need not suffer as we have had to. I think of all
the money lost on follies of empire, that has been built on the good name of
our NHS, and it makes me SadMad.
The
control of this is yours Richard Horton, now cometh the hour, cometh the man.
For it is time to stand firm with the need to do the right thing, not just for
our people or our country, but all those around the world.
Most of
all Richard Horton stand forward for science and its good name.
You can see the Open Letter that David Tuller is committed to here
http://www.virology.ws/2018/07/10/trial-by-error-yet-another-appeal-to-the-lancet-with-more-on-board/
