Who stole my hero?
Who silenced him
To hide the truth?
Who is going to help my boy now?
He's only got me,
his
mother
And trust me she’s of no use
I've asked a few questions
But the answers made no sense.
Ya see I'm a woman
And apparently that makes me
Hysterical
with no common sense.
I try to be brave
A tough cookie
But who is going
To listen to
A woman
A mother
Would you?
Over 200 families have been ridiculed for believing their
children suffer from ME. Over 25,000 children put at risk from professionals, who
should know better. All because one group of psychiatrists fiddle the numbers
on a trial and decided doctors should do not test to look for physical signs. This they say is in the patients own interests?
Children who later, it has been found to have profound problems with
how their body distributes their blood, and therefore their oxygen levels when they stand up.
ME and PoTS go hand in hand.
One of the only Dr's who truly understands Myalgic Encephalitis, has been silenced by those that feel mind over body is the way forward for a problem like ME with PoTS? They do not recognise that when most, if not all ME patients stand up their heart races, starving bodies of oxygen doing untold damage!
In general GP's don't look for physical signs when a diagnosis of CFS/ME is made, because they have been taught not to. We, you and me, let this happen because we choose to stay in the wilderness. That one Dr; world renowned for helping families like mine and my friends, has been told he cannot speak about ME or to help those suffering untold damage. How many more children will suffer now??
Forget us not, those of us in the wilderness, covered by the thorns of misunderstanding
