Showing posts with label cancer. Show all posts
Showing posts with label cancer. Show all posts

Monday, 1 February 2016

A bit of word Tomfoolery on a Monday morning

If you have any form of Chronic illness you will know the Hell in Beauty

Add your condition and the beauty of your life: Family, friends, cooking, gardening or just a small amount of time pain free. I want to build a landscape that we live in X


The Living Hell of Beauty

Meet and greet great disaster
With every punch and blow
You stand still
Stand firm I say
Take it like a man my girl!

What the bloody hell is an upper cut?
Oh... there it is!

There is something deep
Within that makes me hold
Hold it in, and take the blow
Solar plexus
Perplexed

You’re from shoddy family
Connections far too low
To be strong of will?

Listen to him, listen close
He makes sense
Does he not?

Shadow boxing
Does not make you stronger you know
Weaker
Hold firm
The truth do will out
Eventually
In the end

Take a look from histories landscape
Torturous
Forsaken
Beleaguered

That soft foggy landscape
Where no beauty should aspire
But see the poppies
The lowly nodding poppies of beauty

Do you hear the voice of the nightingale?
It rises with the truth
And the hidden beauty

And yet, the weasel and the stoat
Gnaw and bite the beauty back
Hide the truth
Behind the veil of fog
That covers the beleaguered soldier’s agony
Their hypermobility flung out with PoTS
A belief system
Not a living hell?

Quiet contemplation will fix the landscape
March I say, march!
Accept you are mentally ill
Because I say so!
You are not living on a
Battlefield!
You are living in a dream world
My Girl!
Because I say so!

It does not smell that way to me Sir
The sun of truth
It does burns bright in my eyes Sir
I see the world as it is
Thank you

I see the poppies
On the gentle breeze of change
I hear the nightingale singing the truth 
In Berkeley Square
And beauty
It has always been there
And is set to rise!

Beleaguered soldiers young and old
Will walk hand in hand
Solid, strong  
And united!
They shall not be forgotten!
Nor will you Sir

Nor will you!

Wednesday, 27 February 2013

HOW DO YOU LIKE YOUR EGGS, FRIED OR POACHED?


I wrote this short story after a couple of conversations I had with family, friends and with a lady waiting in a doctors surgery. That chance meeting - fleeting though it may have been, thought provoking most definitely, made me smile and keeps me smiling. 

I hope this story does that for you too.

________________________________________________________________________________


"Now there are some things you just have to learn to live with, Esmay my girl!” I told myself as I did a double take at my reflection in the mirror – I was bemused by my altered shape. A mound of clothes lay on the bed, I’d tried the whole of my wardrobe on.

The very attractive surgeon had given me perfect poached egg boobs that suited my hips, and made me look in proportion. I’d taken a bit of convincing, the double mastectomy wouldn’t make much difference to me really I had thought. How wrong I was. Clothes flattered my shape now. It was pleasingly different, and I was glad I had taken his thoughtful advice. Was it all worth it at the age of sixty though? Soon to be wrinkled up, and too decrepit to move, let alone strut my stuff. I laugh at my own silliness as I strike poses in the mirror.  Was I sixteen or sixty, I sometimes wondered.

Was it God or my parent’s genes that had given me fried eggs as boobs, no it was Mother Nature having a laugh! Nature had a habit of rubbing salt into sore wounds. I would watch as they filled out when I was breast feeding to a lovely D cup, I liked Dave’s face when he saw them. I was always hopeful they would stay that way, but they deflated like balloons afterwards, looking not dissimilar to tassels on a stripper. For months afterwards I would mope around and my ego and libido would be as flat as my chest.

Now the artificial ones protruded from my body, disconnected, and I wondered if they would ever feel part of me. They looked good though, all dressed up and perky. That salt rubbed a little deeper when I think how Dave would have liked the look of them too. This new life of having a body shape I liked, without a husband to show it off to was just plain sad. He didn’t like the idea of me getting implants, but it’s now one of my life’s biggest regrets, we could’ve had a lot of fun with them. Now they were just for show, that sort of fun was a thing of the past for me.

Why had I agreed to go to this blooming dinner party? I close my eyes before I walk out of my cocooned sanctuary, and taking my resolve I set out to do battle once again with life and this new reality of mine. Kaz would not take no for an answer, if I tried to hide she would find me, if I found a plausible excuse not to attend she would dismiss it, so I might as well get it over with. She is my closest friend, support and my foundation. Full of life, fun and a great cook, a goddess, but was that going to be enough I wondered, as I walked the familiar path.

“It’s just the normal crowd they’ll help you through it. You’ll be fine.” Her voice popped in my head. I trusted her judgment, but I didn’t trust myself. I hope I wasn’t going to let her down. “You won’t let me down” she had earnestly told me. But I’ve lost the ability to keep my bitter sharp acid to myself, I was sure it would slip from my thoughts to my lips without any provocation. I had once prided myself on the empathy I could give, now I felt so sorry for myself, and I couldn’t endure my condescending attitude to others misfortunes, now that I understood the meaning of misfortune.

Pulling hard on my bootstraps I rang her doorbell.
            “You look stunning Esmay.” Vincent was honest and straightforward, so I knew he meant it, it wasn’t just a pleasantry. I smiled at him as he handed me a large glass of my favourite wine. He took me by the shoulders and squeezed as his wonderful reassuring eyes gave me strength, and his gentle kiss gave me warmth.

The familiar good natured chatter filtered through to the hall and called me to join them. I hesitated but Vincent, with his supportive hand in the middle of my back guided me into their kitchen. Kaz was cooking lamb, and an explosion of aromas hit my taste buds that did a little jig of joy. She floated over with appetizers. A one arm hug held me with love and I felt drained and just wanted to crumple to the floor. Vincent topped up my wine, and I ate an olive. They were such an attractive couple, I smiled as my heart dropped – I had been like that not so long ago.

People mingled through the large homely elegant space, and out to the garden. Like feathery wavelets, they parted and quietly babbled, eyes avoiding me in kindness. Each dear friends face, trying to control the emotion within. I kissed them, releasing the confines of empathy to a much easier to breath normality.  I joined in the babble, catching up with what I had missed.

I caught glimpses of a new face that moved amidst the familiar ones. Questions he was answering with his caustic politeness pulled at me, compelling me to listen. His voice – that was mellow and smooth had self depravation lingering in his undertones, a humour that I warmed to, and understood. Kaz stood in front of me and comically the striking man bent his head round, so he could keep eye contact with me. I broke the connection as Kaz offered another olive. I took it and looking past her, took a bite. He smiled a warm inviting smile, I focused back on Kaz. She was assessing how I was doing, happy with my progress. She looked over to where my eyes were being drawn to, we looked into each other, she smiled, winked, and offered another plump black olive.

Dave would say “offer Esmay a glass of crisp chilled white wine, with olives and you will see the lighter, sensual side of her come out to play.” I shook my head at her as our broadening smiles became mirror images.
            “His name is Albie, but don’t hold that against him.” I roll my eyes
            “How could I with a name like Esmay.” we both giggle, she touches my arm. I notice he’s making his way over to us. With sheer panic rising I grab Kaz and say a little too loudly
            “Sure I’ll give you a hand.” Albie’s eye’s narrow as I propel Kaz over to the oven.
            “You girls ok?” Vincent pours yet another large glass of wine for me.
            “She has clocked Albie, but run out on him.”
            “You two have set me up.” I accuse.
            “No we wouldn’t do a thing like that would we Vinnie.”
Vincent’s deep chuckle gave the game away. You have to love friends that care and I bit my lip hard. I roll my eyes and take a large sip, well more of a gulp.
            “The starter is ready people, go sit.” Kaz announces so I wouldn’t have time to retort.

She had sat Albie and me opposite each other on purpose, no doubt. We could access each other better that way. I knew how her mind worked, and she knew I would take full advantage of it. I was in the process of doing just that, when I got caught out by his penetrating stare. His jaw was resting on his thumb, as his index finger stroked from ear down to jaw in pondering strokes. It was sensual and provocative. I decided – or rather the olives and wine had, not to flinch at his perusal, but to give him the same consideration. I’m glad I did, for his eyes mellowed, seeping out their secrets, and humour.

Those plump black olives with their hint of chilli, readied your mouth for the caramelised goats cheese squares that Kaz had lovingly laid down for us. Albie’s eyes closed as the flavours devoured him. I found it very pleasing to watch.

I was in trouble again, he had noticed my intense gaze, and was now just as intently watching me, making me more aware; if that was possible, of my new appendages. I wasn’t used to having a cleavage. Every time I looked down all I could see were my boobs it seemed. My spatial awareness was a little off kilter too, and as I past my plate, I knocked the knife off with one of them.

I had recovered by the time the next course was placed in front of me. Nonchalantly I started to cut the soft succulent slow cooked lamb, the aroma of which danced a pirouette with the roast potatoes and lush deep gravy. Normally there would  be nothing getting in the way when cutting food either, but the still soar and bigger boobs made lifting the fork to mouth difficult. Food had to take a different path now, and raised the perplexing question of – should I go around and over the top, or underneath and through the middle. Childishly I was amused by the challenge, and I felt the wine take effect and a giggle escaped.

I let the conversation skip past me; it seemed to the annoyance of Albie, who obviously wanted to know who this mad woman was. Without being introduced and across the table from, he felt decorum didn’t permit him to intrude, which amused me even more. I shouldn’t have had those naughty olives with the wonderful wine; this combination always had a frivolous effect on me. Dave was right and Kaz knew what she was doing. Should I care? “Oh no, we think not!” said the wine and olives together.

Craig, bless him thought everyone knew about my circumstances as we were among old friends, forthright as ever, loudly stated from the other end of the very large table.
            “Looking good Esmay”, He made a schoolboys gesture with his squeezing hands in-front of his chest. “They suit you!” A sharp kick from his wife, and a held anxiety rippled around the table. I let out a forgiving giggle, which made the smile come back on Craig’s loveable face, and with relief let the tension go from everyone.

I really didn’t blame him, but as I looked at Albie his preconceived ideas stung like a bunch of nettles given to me as a bouquet. The tangible tension made every eye around the table go in our direction.
            “Men get motorbikes as a midlife crisis, women it seems get facelifts or new boobs” Albie’s disappointment gave out a stunned silence that looked sympathetically at me, which I answered in my new caustic way.
            “I thought with my new improved boobs I’d get a couple of tattoos, I expect you disapprove of them too?”
            “Depends what they are I suppose.” His eyes challenged mine. I waited until he took a good sip of his smooth red wine, before I answered him.
            “Well next week I’ll be getting tattooed nipples to go with my reconstructed boobs, do they count?” He spluttered and Kaz gave him a napkin. He was gracious with his reply.
            “Beats love ‘n’ hate, which is what I’ll be getting across my arse for that, I’m sorry I should’ve thought.”
            “You’re forgiven. I don’t know why the surgeon took it upon himself to give me pert poached ones instead of my flat fried ones. As far as I can see they only get in the way.” An eruption of laughter went through the dinner party. “He assured me though they would balance out my hips as nature should’ve intended. He didn’t tell me they take a bit of getting used to.”
            “They do, what I mean is not getting used to as I wouldn’t know, but balance out your hips” for the first time Albie smiled his true and honest smile, the one that people have hidden most of the time. It was glorious and heart warming.
            “Are you saying I’ve got big hips?” feigned upset hit my voice just at the right note.
            “Sorry big foot, and even bigger mouth, I’m not forgiven then?”
            You’re forgiven… but I think I should make you suffer a little. What is so wrong with enhancing them anyhow? I could’ve done with my D cup when my husband was alive, life would’ve been a lot more fun.”
            “My wife enhanced hers and died of cancer three years later, that was not fun.”
            “My husband died of testicular cancer without enhancements… at least I don’t think he had any that wasn’t much fun either, and well look what happened to me. Mother nature is a fickle.”
            “Woman.”
            “You got me on that one.” Breath held at our combined misfortunes,the black humoured tête-à-tête suspended our friend’s faces in contorted silenced laughs, until we released them with our own. The ripples of which eased the subject matter, unrestricting the concerns we all felt, and the opinions we all held. Twisting and turning those opinions altering their course.
            “Well Esmay, which do you prefer?”
            “Life is such a bitch Craig, what can I say, I’ve always hated fried eggs, much prefer poached. I made do for years; much good that did me. Now Dave said he preferred fried, but I wasn’t convinced. He always asked for two poached eggs on Sunday mornings.” The ironic innuendo made me laugh “now I’ve got them I don’t know what to do with them, but like you said they look good.” and I rose my glass in a salute, Albie made it a toast though.
            “Fried or poached, you have to love them.”

THE END

Thursday, 18 August 2011

I Will Wake up Laughing


They had given me another shot of morphine but the pain still exploded like those pretty fireworks that expand out like an opening hydrangea. I wished that the pain would move to a place giving the clueless doctors a hint to what was causing it. But having just been told by the very observant surgical team; who all week had been sticking things in me, up and down me, that I was a woman and could have and I quote ‘slightly differing bits and bobs that could cause gynaecological problems.’ Stunned by this admission, I let hope and faith silently slip away into the never, never.
            I hate morphine. The first time they gave it to me, it made me sick. So now they give it to me then stab me with the anti-sickness drug. I asked them very politely to give me some of the stuff that drug users have, to at least give me some fun while I  lay incapacitated but they just laughed.
            I now have a racing heart and feel sure it will jump out of my chest like one of those wind up toys you can get around valentines. My eyes are shut and colours jump around my head as a warm and soft blanket slowly pulls itself up my toes and I panic. Is this what its like to die? I could see the light that’s for sure.
            I try to open my eyes and reach for the buzzer to call for help but the warm, soft and very heavy blanket make it impossible to shake it off, no movement can I make nor sound. I felt a tear push from my eye, its forever expanding form lay between my eye and my nose as the blanket pulled itself over my head and I thought of my mum who died last year, her death was nothing like this though. My poor dad was going to be left alone. Cocooned in this warm deep feeling the deepness devoured me.
           
__________________________________


Gods voice was nothing how I imagined it. It was far away and I strained my ears to hear what was said. I tried to think of all the things I had done wrong and how I could account for my actions.
‘Miss Longbottom.’ As the warmth of the blanket fell away the pain came back. This could not be heaven it must be hell! You wouldn’t feel pain if you were in heaven, I felt sure of that.
‘Miss Longbottom, could you open your eyes for me. It’s Mr. Pratt and I need to discus what we found on your scan.’
‘Not another Pratt!’ I heard several voices ripple with amusement. I Smelt spice to my left but the voice was on my right. ‘I just got rid of one Pratt, I told him to sling his hook.’ I wanted to explain but I had no energy left.
‘Hear what I have to say and then you can tell me to sling my hook too, if you like.’ His gentle humour made a faint smile come to my face and he seized his opportunity. ‘It will be worth while I promise.’ I opened one eye and his face circled like a vortex making me queasy. I couldn’t be sick not in-front of all these people, anyhow I had nothing to eat now for days or was it weeks? So nothing would come up, not really any cancelation in that though.
‘It weren’t worth it!’ I pathetically and churlishly responded.  
‘I know I’m not the most attractive person but give it another go’ everyone appreciated that one. My smile had broken across my face and I knew I was going to like him and somehow trust him.
            I also knew it was going to bad news. I knew every subtle tone doctors use to convay the difference between hopeful and terminal. I had experienced them all through my mother’s battle with cancer.
‘No! Just tell me while I have my eyes closed. I don’t want to be sick over someone who makes me smile.’ I felt a hand gently squeeze mine and the smell of spice soothed the needling sensation of anxiety.
‘I would prefer it if you have your eyes open.’ This meant treatment and he needed to know that I understood what he had to say.
‘Bugger, it’s going to hurt, I have an aversion to pain.’ Another ripple politely went in the semi circle around my bed. I felt the cooling hand soothing. The exploding knot expanded. ‘Could you just give me a mo so I can stop the world from spinning?’ I could sense him looking at Mr Spicy hand and hesitating.
‘I have a few more people to see and will get back to you. Not a problem.’
‘Thanks’ He lingered and then they all shifted body weight to follow Mr. Pratt in his wake. The hand still was over mine and I made an effort to gain control of my body and open my eyes, grateful I didn’t have an audience at my pathetic state.
‘Would you mind me calling you by your first name?’
‘No I don’t mind’ I laughed ‘anything is better than Miss Longbottom.’
‘My name is Professor Anthony James and’ I cut in
‘Wow a Professor I must be in a bad way, just let me get my eyes open.’ A sickening thud held my heart captive as my eyes began to work I looked up at the Professor. He was striking, tall and bald, which suited him. His dress sense was sharp distinctive and unique. I was stunned. He smiled a little uncomfortable with my reaction.
‘Can I call you Anthony?’ I asked ‘professor freaks me out?’ His face relaxed and gentle humour touched his eyes.
‘You can call me what you like as long as it’s not Longbottom. My Christian name is Freya.’ I told him.
‘Freya is a nice name.’
‘Not at school with Longbottom. I was called ‘frayed your long bottom? Sometimes they would put knickers into the equation for extra kicks. He raised his eyebrows in the most captivating way. This mellow feeling I had now with the drugs was a good place to be, if only it would last and put the exploding fireworks out.
‘I was the one they called when they took your ultra sound scan’ I cringed; I would have preferred never to have met anyone again who had been there.
‘Sorry’ I said
‘You have nothing to reproach yourself over.’ Normally, when a doctor or Professor said that, it was said as a matter of course, a pleasantry but he meant it.
‘You’ve had a pretty rough deal over the last month or so.’ He nodded to my notes that now reached a foot high of a man with size thirteen feet. I blushed, having no idea what was written in those notes.
‘Good reading?’ I asked. He looked at me with such sorrow; I knew he had fully read my history. I felt so angry. All this pain was so unnecessary, avoidable even. He squeezed my hand.
‘Mr. Pratt will be back soon. He has his young team with him. Would you like me to ask them to stay behind while he has a word with you?’
‘No. I’ll be ok’
‘Right then, I’ll just go and tell him you’re ready.’ He squeezed my hand with his calm cool one and off he strode. His purple pinstriped suit accentuated his body in all the right places. The same shade of purple was used on his shoes. He could have looked as though he was a conceited peacock but as my mum would have said he looked ‘dashing’ he was considerate and kind. I smiled at her voice inside my head ‘We need more people like him. And he sure is sweet eye candy’.
His best quality though was that he understood people and wanted to change things and would go to extraordinary lengths to make things right. He had shown me that in the little room where I found out that I mirrored my mum’s diagnosis in everyway detail.
            I was a lot younger than her and had no children and likely never to have any, I may be lucky and have a life though, unlike my poor mum. It was time to show my true colours, hold onto my beliefs and put my money where my mouth was.
            Professor James was talking to Mr. Pratt and they both looked over to me from time to time. Their entourage following closely holding onto every word they spoke learning, understanding and willing. I closed my eyes to shut out the emotional and physical pain, to become who I am. I had one chance to make a difference to these impressionable people to tell a truth that rarely gets aired, to give them raw unyielding and honest reality. I knew the drill better than most.
            Professor James on my left who’s spicy tones gave me strength and vitality with Mr. Pratt on my right with his open face.
            ‘Miss Fraya Longbottom.’ There was a boyish look concealed in formality between them not lost on me or the rest of the team. My eyebrows rose at a schoolmistress angle, they both apologist immediately. ‘Fraya is able to keep her eyes open now.’ The Professor began.
‘May I call you Fraya?’
‘If you call me anything else I’ll be very angry and you won’t like it!’ We all laughed softly. The tone of light and dark was set for the relaying information. None of us, even with our collective experiences found this conversation easy.
‘We found, what we hope is a dermoid cyst. This’
‘This does not mean it is cancerous as most dermoid or cysts are benign. My mother died of one last year.’ I tried so hard to let him carry on with his speech but I just couldn’t handle it. ‘There is only about a 2% risk I know, but as I had an ectopic pregnancy last year and this year I have a possible dermoid. Luck is not on my side.
            I have spent the last months trying to convince my GP I needed a scan. He said I had psychosomatic pain. Understandable considering that my mum had just died riddled with cancer because she got her diagnosis too late. My boyfriend walked over me to get to work because he thought I was a drama queen and I had to pass out at the surgery to get anyone to take me seriously.           
            I was sent to a surgical ward because the GP had to send me in with something so questioned appendicitis. I spent a week with the surgical team examining every orifice, looking for the cause of my demise only for them to miss the one that I kept telling them about.
            Don’t you people talk to each other? Do you not see patients as humans instead as a list of symptoms? Are we just fragmented bit and pieces. To see the full picture you have to have all the pieces joined together, communicate what you know. They then in their infinite wisdom decided that patience came in two forms male and female and sent me down to the gynaecological ward to have my extra bits looked into.
            They observed me, waiting for the pain to go away, instead it increased. If they had just read through my notes but they couldn’t find them or couldn’t read them.
            Sorry but this patient has become in-patient and in too much pain to go over old insignificant ground. The big picture is that I am a woman I have a possible dermoid cyst on her right ovary and wants to know where we go from here.’
            Mr. Pratt nodded at me. ‘We will perform the operation to-day to remove it. I’m trying to fit you in for this afternoon. I have asked Professor James to perform the operation and I will be assisting. This is his field of expertise and we are lucky to have him. Professor James would you like to take over.’
            ‘Thank you. We will send a sample off for analysis, which is standard procedure and takes a couple of weeks to get the results back. We will look thoroughly I promise, for anything we feel needs further investigation. You are in an incredible amount of pain because I believe that the cyst is wrapped around your fallopian tube and engulfs your ovary. In these cases we may find that it has bounced on and off other organs in your body, hence the unusual places that the pain has affected you.’
‘We are all unusual, as individuals we are unique, wouldn’t you say?’
‘Yes I would’ He looked down at me and I felt a rising crush developing. Everyone gets a crush on their Doctor; my mum said it was the thing that kept her going, all the lovely doctors and surgeons. I thought Professors were infinitely better and my crush was deepening into love. You had to love the man that was about to save your life.
‘You know and understand that I may not be able to save any part of your only ovary?’
‘Yep, I sort of figured that.’
‘If I can, you may have a better chance than you think of being fertile. It depends on you as a unique individual and what I find’. He squeezed my hand. I love him, I really, really do.
‘I need to go and sort a few things out, get the relevant forms then I will be back and go into more detail about the operation and its consequences. Your father is coming in and has asked if he stay with you. Is that Ok?’ Tears well up in my eyes, my poor, poor dad. I nod, he squeezes, my heart swells.
            They leave and the nurse comes over. She is my around my age yearly to mid thirties, confident, fun and caring and told me how she listened into the conversation.
‘You were very good. Mr Pratt will do what he can and Professor James is excellent and is working on some new procedures with conditions like this, you’re in safe hands now’.
‘Safe and caring,’ I smile, ‘it makes the difference just to be believed and listened to. Do doctors never get a full picture of what happened to their patient? Can’t see how they can make proper diagnosis unless they know the full story.’
            I’m given all the ammunition they have against the pain. My heart pounds as though it is about to leap out and take flight and I force myself into a sleep.

                _____________________________


            In my dream, I’m back home as a child. The smell of fresh laundry blowing in the wind caresses my face and I climb into the sheet hanging on the line, hoping that it would feel like a cloud and for a while I swing in the breeze. I so wanted to float on a cloud. Softness brushes my cheek and I feel my mother holding me, her smell engulfing me. I feel elated and the warmth of her smile gave a golden light as she called me ‘Pumpkin’. I opened my eyes and my dad’s tear stained face looked down. A forced smile never reached his sorrowful eyes as he kissed me lightly on the cheek.
            I smelt spice, delicate and tantalising. I looked around for him and there he stood. He introduced the anaesthetist, we went through the forms. I was prepared for theatre and rolled down the now familiar corridor.
            I looked at their faces ranging in age and gender. All gowned up, explaining what was going to happen next. I was having a spinal tap so that I wouldn’t have to put up with too much morphine. Hanging over the bed, stretching my back to make it easier for the needle to hit the spot, I took a good look at them.
‘You lot look worse than I do.’ They looked exhausted. ‘Leave me until Monday.’ They laughed. Robert who had expertly and without trouble administered the epidural asked me to swing my legs back onto the bed. I looked at him as though he was daft.
‘You have just given me a cocktail of god knows what to stop all sensation in my lower body and are now telling me to swing my legs, that I no longer feel. How am I to do that then?’ The good looking blond whose clear blue eyes shone with humour took pity on me. She gently helped me back on the bed. Arranged the sheets so my dignity was kept intact and a mask was placed over my face. I will wake up laughing was my last thought as the blanket of sleep engulfed me.

The End

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