Saturday, 3 March 2018

A Mad Hatters Tea Party In A Wonderland of Despair


Why Have We Got Chocolate Teapot Science?
And Not The Elegant Bone China Science!
A Mad Hatters Teaparty In A Wonderland of Despair

I guess there are 101 reasons why Myalgic Encephalomyelitis (ME) has more than its fair share of chocolate teapots. What makes health professionals lose their humanity in such a chronic illness? You do have to wonder why and how this ME Wonderland of Despair has been achieved. Come with me down the Rabbit Hole to witness a land we are forced to live in.

When you read the history of ME, you start to see the organised chaos of a Mad Hatter and the March Hare, and how they have been allowed to take control over an exclusive Teaparty. They have achieved this with just linguistic gymnastics and passive aggressive psychobabble semantics. There is no sound proven evidence of behavioural disorder, mass hysteria or mental illness in ME. Their own evidence proving that ME sufferers are not against mental health or suffer from mental health per se. Still they shout out off with their heads, they are vexatious activists not to be listened to, every time the chocolate Teapots start to melt, and people have started to take notice, or a water tight Teapot is brought to the table.

The sleepy dormouse of the establishment tries to lose their responsibility, but is sleeping on their watch a defence? As the dormouse’s slumber they are leaned upon, the closeness of their acquaintance an uncomfortable truth. So, the evidence of the truth is then hidden and never spoken about, anyone who tries has gaslighting shone in their faces. Denying medical evidence is another trick they employ, with the help of those allowed to sit at the table of the Mad Hatters Teaparty. Saying there is no place unless you drink the wine, when you ask what wine, this is then given as a reason to stop you from pulling up a chair.

The evidence of the torturous treatment imposed is denied, even though Ean Proctor, Sophia Mirza, and Naomi Wittingham; to name a just a few, show this to be the case, it is all explained as a necessary evil. For Decades the ME Wonderland has been in a medical Rabbit hole, with the Mad Hatter running the show and a teaparty to rival all lavish and unrealistic occasions. Abandoned by reality, truth, integrity and honesty.

The elegant porcelain teapots holding the boiling water, which made a lovely brew for all to see; like Dr Ramsay’s diagnostic criteria in 1986 and the understanding that ME could become chronic quickly, have been covered up by the ugly mess of the chocolate teapot science. Those Teapots held a brew of cherry blossom tea that is both bitter and twisted, with drink only me on the labelled spout.
All the Bonbon dishes have been kicked about too and we now cannot tell the difference between a humbug and a toffee, with not a Dolly Mixture insight. Humbugs; are masked injuries leading to an emotional response, lack of minerals or other physical stress like virus, mould, chemical etc. to the body. Toffees are those who have lost all outer protection and are in an emotional meltdown. The research into triggers of either, should never be covered in chocolate teapot science, and nothing should be assumed. Never to look for the physical in the psychological, is a big mistake. We should have learnt this lesson, but we seem to be going backwards with the biosocial approach.

We need to understand how and why mental instability occurs and how we can support sufferers. The problem we have, is that everyone gets lumped together. The introduction of Cognitive Behavioural Therapy (CBT) from the PACE trial has damaged our understanding of Mental Health.

Many that suffer Post Traumatic Stress Disorder, find that physical energy enable them to cope, but this is only part of the foundation they need to recover or live with their new reality. Talking therapies given at the wrong time, with this disorder can make the trauma go deeper. We are all individuals and we need to be seen this way.

To not understand the relevance of the toxic mix in the Gulf War heroes is beyond words. To put their physical stress as Mass Hysteria is way beyond Alice in wonderland.

The main researcher in the area Gulf War syndrome also talks on the First World War and never mentions gas poisoning, or the impact the explosions had on the brain. Yet we freely talk about the footballers head injuries and how that effects and damages the brain. Does no one else see the madness of the this wonderland of misinformation were pet theories take over good science.

The Mad Hatters Teaparty has taken over the normal everyday reality of life. The normal blips of emotional instability due to normal stressful events we all go through, hormonal, dietary or illness is being infiltrated and seen as only a mental illness. Understanding the physical, emotional and body stressors can make a huge difference to support given and enabling recovery.

Let’s take having a baby. Having a baby puts an enormous demand on your body, social standing, and alters the meaning of life. If we look at this, we have a balance in our Bonbon dishes, a real mixture of both humbugs, toffees and Dolly Mixtures. Unfortunately, we now hear a lot about wellbeing and mental health with regards to becoming a parent. Not so much about the support once given by family and friends that was both supportive and educational. Neither do we hear about diet and rest.
Now, you must be ready not only to be a parent but also take on the world. This is orchestrated by those that can afford to pay for support. We seem to have lost the understanding of the hormonal changes you go through, the bodies increasing needs, and distinct lack of sleep. CBT or talking therapies will not take the place of family support, hormones, minerals and sleep. In effect the humbugs are not recognised and only the toffees are addressed. All Dolly mixtures trampled on, giving an imbalance of treatment. This then translates to an imbalance in the parent’s self-belief. The result is that Chocolate Teapot science is allowed a free rein to brew more Cherry Blossom Tea.

If you were given a hormonal, thyroid, folic, iodine, iron, calcium and magnesium tests through pregnancy all the way through to when the child has been weaned, one wonders what correlation you would find on the general physical and mental wellbeing of the mother and child. The Bonbon pot would be balanced and full.

Let’s take just one of those little building blocks of health and wellbeing that make the Bonbon pot balanced. A little and unknown about building block called Iodine. This one small part of our diet is hard to incorporate as our food is relatively low in it, and the environment is depleting it. It is essential for a fetus and young child’s brain development. During pregnancy a woman’s iodine needs are increased. If we don't know about it we don't increase it and we can't track it to the cause, so we blame mental health.

Now when I was pregnant with Angus I was constantly sick, and it was agony eating. Forcing your gag reflex to behave is not easy, I was sick 24/7. I was also unable to eat much, what I did quite often came back up. So what effect would that have had on me and Angus. Low Iodine means low thyroid hormone and can lead to low birth weight and premature delivery. He was early but not unduly so. My hair is so fine you can see my scalp. I have lost 5 babies and I also have hypermobile joints. Low thyroid also gives you muscle weakness and affects your emotional stability. No wonder then that I cried when I kept dropping things, it was not my sanity I was losing, it was my iodine, among 101 other things. So why do we not track our levels of these building blocks of body and mind? Chocolate Teapot science?

If that had happened and our understanding of the importance of all those building blocks through illness I wonder if Angus’s ME, Celiac and hypermobile joints could have been tracked and a recovery found. Would Sepsis have been looked at as a possible cause of his condition or the slow sepsis that Dr Bell has thought about, taken more seriously. Would tracking them now show us a difference in his Post Exertion Malaise (PEM) and cognitive dysfunction when he enjoys life a little too much?

Chocolate Teapot science wants to show we have full control of our minds, but that is never going to work if our building blocks are missing. We must get realistic; Chocolate Teapots are never going to hold the hot water needed to brew a robust tea.

Most of us cannot read our blood results, so we rely heavily on the medical staff to do this for us. They intern rely on the education they receive, this intern relies on watertight research, carefully measured with the right blend of tea, that is brewed for the right amount of time. If the Teapots don’t hold water and the brew all wrong, with the Bonbon dishes uneven we are all going to live in a costly mess. This is what has happened to ME. A costly mess, through lives lost and the fabric of society and its thinking ripped to shreds.

This mess has not only cost lives and stability in the medical profession, research and the finances of our country. It has brought in to question the trust we place in science and those that preform it. The debates now going on in parliament with regards to PACE trial and Science trials in academia need to be public and balanced. Thanks, to TV in parliament we can see what is being said, and I am appalled at the haphazard way research can continue in our Universities and hospitals.

This Wonderland is now a world-wide problem, caused by the Mad Hatter and his ability to cover the table with Chocolate Teapots, to kick off the Bonbon dishes, taking out all the Humbugs, telling everyone there’s only toffees and no such things as Dolly Mixtures and to move on, there is nothing to see.

Good doctors have been taken to the GMC if they dare to mention diet supporting the body, as with Vit B12, looking out for Thyroid problems! Dr Myhill has been taken to the GMC 28 times and the GMC has not investigated why this keeps happening? ME could have been understood and treated decades ago if the truth had been told and acted upon. So why was it not? Political or Empire building?

Mothers like me are questioned when we do not want to torture our children with CBT and GET treatments, as happened with Ean, Sophia and Naomi. At anytime I can be accused of Fabricating or Inducing Illness, like those mothers that have gone before me. I have no defence or support and my child can be taken in as little as 30 days. You can see the harm that has been done when you watch the YouTube videos I have listed below. This has been covered up by those friends sitting at the Mad Hatters Teaparty. My Rabbit Hole of reality is truly a Wonderland of Despair.

The Medical Research Centre has never put resources into the management of these vital building blocks to our physical and mental wellbeing with regards to ME. No scans of the brain looked into why? So how can we ever know what affects the sufferer. This is just one small part of the problem at the Teaparty. Sepsis, I say Sepsis. Slow sepsis has been talked about for a long time now, and is never looked at with regards to ME.

Looking to include all known factors, inviting all those with China Teapots and Alice herself, to sit at the table is what is missing. Most important is to listen, as Joseph Montoya explains ME has been whispering and we are not listening.

Alice should be asked to the table and her voice should be heard above all others. The questions she asks can take time, but Michael Sharpe is right Prejudice is a great time saver. You can form opinions without having to get the facts, Chocolate Teapot Science is easier, and he should know. If you have a mad Hatter controlling the Party, you will never have to get balance or truth.

We are only beginning to understand the very basics of our food, gut, brain and wellbeing it’s about time we got some porcelain research and cleared up the chocolate teapots and got everyone sitting at the table with clear direction, to support good science and those patients that suffer.


Will we ever stop going down the medical Rabbit Hole and have a bit of reality.

The result of this endless forcing you down the rabbit hole is "Mother Blame" a way of gaslighting the healthcare needs of 25,000 children away into another decade. As a mother how does that feel? Let me explain 

https://youtu.be/DNNeE6rhTm0


The Early History of

Naomi Wittingham and others voice the abuse that has been hidden from view
Naomi lived in constant fear of what was going to be forced on her next. This sadly still goes on. What will it take to stop this?
Dr Myhill
The Death of Sophia Mirza
Euan Proctor



No comments:

Post a Comment